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Finding Strength in Community

The burden of HAE attacks affects everyone in the HAE community. There's power in sharing our stories. Stay connected to hear from others navigating their own attack experiences.

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Insights from the community, for the community

Joy, living with HAE, from Mind the HAE Attack's documentary
Attack-Journey Attack-Journey

Watch the documentary

What do you wish people knew about your HAE attacks?

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HAE Attack Video Promo HAE Attack Video Promo

Still experiencing HAE attacks?

You're not alone—the HAE Attack Journey Survey shows how even patients taking prophylaxis prepare for and treat HAE attacks.

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Laurie, Ashley, and Linda, who live with HAE, from the Mind the HAE Attack documentary Laurie, Ashley, and Linda, who live with HAE, from the Mind the HAE Attack documentary

Real stories of treating attacks

Hear from other people living with HAE as they share their experiences, resilience with attacks, and advice to themselves in the future.

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It’s meant the world to me to be included in
the HAE community.
Person living with HAE

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