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How would you advise yourself to treat your next HAE attack?

Even with prophylaxis, the weight of HAE attacks persists for people with HAE. Hear their treatment stories.

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Explore resources and stories about people living with HAE

What do you wish people knew about your HAE attacks?
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Ask me About Attacks

What do you wish people knew about your HAE attacks?

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STILL EXPERIENCING HAE ATTACKS?

You're not alone—the HAE Attack Journey Survey shows how even patients taking prophylaxis prepare for and treat HAE attacks.

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Photo of three real patients living with HAE sharing stories of attacks while taking prophylaxis Photo of three real patients living with HAE sharing stories of attacks while taking prophylaxis

Real stories of TREATING ATTACKS

Even with prophylaxis, the burden of HAE attacks persists for these people with HAE. Hear their treatment stories.

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References: 1. Betschel S, van Kooten S, Heckmann M, Danese S, Goga L, Guilarte M. Remaining burden of hereditary angioedema (HAE) attacks despite modern long-term prophylaxis. Abstract presented at: EAACI 2023 Hybrid Congress, June 9-11, 2023; Hamburg, Germany. Allergy. In Press. 2. Betschel S, van Kooten S, Heckmann M, Danese S, Goga L, Guilarte M. HAE Patients decision to carry on-demand treatment when away from home. Abstract presented at: 13th C1-inhibitor Deficiency & Angioedema Workshop, May 4-7, 2023; Budapest, Hungary. Allergy Asthma Clin Immunol. In Press. 3. Grumach A, van Kooten S, Heckmann M, Danese S, Goga L, Garcez T. Understanding the complex decision-making associated with on-demand treatment of hereditary angioedema (HAE) attacks. Abstract presented at: EAACI 2023 Hybrid Congress, June 9-11, 2023; Hamburg, Germany. Allergy. In Press.

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